Development and Approach

The primary purpose of national datasets is to enable the same standard of information to be generated from care records, independent of the organisation or system that captures the base data.

Datasets are structured lists of individual data items, each with a clear label, definition and set of permissible values, codes and classifications. From this, secondary uses information can be derived or compiled or both, in support of specific health and social care purposes.

Each dataset is developed with the assistance of a reference group, which brings together health and social care professionals, Department of Health policy leads, representatives from Royal Colleges, other partner organisations and advocates.

The input from the reference group forms the first stage of an extensive phase of development and testing.

This process is carried out in line with the guidelines set down by the NHS Information Standards Board (ISB).

The result of all this work is an approved information standard that defines the data required to flow from the electronic patient record into the Secondary Uses Service (SUS).

Datasets approach